Nuevo número: DYNAMIS 42 (2)
The public perception of “rare diseases” has been constructed through the media. Patients and family organisations in synergy with the mass media and the support of online social networks have provided their own defining elements. Between slogans that deny, question, or qualify what is “rare”, and others that maintain that “normal” is unreal, the last decades of the 20th century have witnessed the popularisation of “rare diseases”. The historical approach to rare diseases must start from an integrative perspective of multidisciplinarity, both in approaches and methodologies. This dossier has been designed on this premise and the most consolidated and suggestive lines of historical research have been selected for an understanding of the problem in its complexity. The various geopolitical spheres —Japan, Brazil and the Iberian Peninsula— provide a rich transnational comparative historical study. The discussed topics address the defining characteristics of rare diseases, from the perspect...